My baby and me

Kei be encouraged, I have a neice that they said would not make it because she was premature. She has had a few seizures in her life but she's 9 now and she's one of the most loveable children you're every meet. She also has trouble with her eyes. She's a A honor roll student, she goes to school, love church and she loves to sing.

Her mother was like you she worried so much about her and one day we had to touch and agree in prayer about her letting God take care of my neice while she's at school and now she's ok with it and all is well.

Kei continue to seek God for peace for you. It's a terrible thing to be worried all the time it will cause you not to be able to function as the mother and wife you need to be.

You are a good mother, and you just need a little peace in this storm.

Father grant my sister (Kei) peace that surpasses all understanding calm her so she can rest without worry . Father also cause a miracle with her daughter, let all the test be normal and that she never have another seizure again in Jesus name amen.
 
Kei, I dont "know" you. But I have read your posts about your DD on the children's board. It is obvious that you love and care for your daughter. I don't believe God "punishes" our children for our mistakes. Stay encouraged and find a good neurologist for your daughter.
 
Kei said:
update

we still have no real answers to why she has seizures

she had one in may and another saturday morning
I'm so scared I can not sleep
I literally stay up all night watching her

pray for us ladies
we need it
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Does she take seizure medicine to prevent the seizures? She is a beautiful little gal. Give it to God.
 
Kei said:
thank you so much
sometimes I wonder if I'm being punished
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Your being silly. Yes, I said silly. I don't believe God takes out punishments on our children. There are several families leaving with a special needs child. You sound like a dedicated and good mom.
 
(((Kei)))

Although I am very late on this whole situation I will definitely add you and your beautiful little girl to my list. I really do pray that you can rest so you will have the energy you need to take care of her and take care of yourself . . . . .
 
Country gal said:
Does she take seizure medicine to prevent the seizures? She is a beautiful little gal. Give it to God.
Click to expand...

no
they say that she doesn't have them often enough
we use diastat 7.5 when she has one
it makes her soo so sick
she has lost 2 lbs in a weekend

we take her to bluebird clinic @ texas children's
she hates the hospital
she runs, hides, fights the whole time we are there
I'm gonna try to get an appt but the wait is usually 6 months


I know it's silly
but I was on bc when I got preg with her and I didn't want another child
everything has been hard concerning her
she has to try 400% harder than her brother

she's happy today though
pushing her baby in a shopping cart, carrying her purse with her blonde wig on:lachen:

I asked her how she feels
she said "I'm ok, let's get in the truck and go to walmart"
 
Kei said:
thank you so much
sometimes I wonder if I'm being punished
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No you're not being punished, God knows you can handle this and that you have just the right about of love patience and understanding to help your daughter through this.

You can do it, everything you have to succeed is in you tap into it and pull from God's love and strength.

Also let your husband be your support don't try to do it all by yourself.
 
I'm praying for you Ms. Kei. Your story brought tears to my eyes :( I hope that everything works out alright for you and your baby.
 
dreamer26 said:
No you're not being punished, God knows you can handle this and that you have just the right about of love patience and understanding to help your daughter through this.

You can do it, everything you have to succeed is in you tap into it and pull from God's love and strength.

Also let your husband be your support don't try to do it all by yourself.
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thanks you for your kind words
I don't feel like it @ times like this
lost and helpless

he's out of the country right now
I went and got my mom and my neieces to help me out
she's napped on and off all day

thanks for the encouragement and prayer
 
Update


We haven't had any seizures
Ms Ray is in a transitional class and will be in a regular class in the fall

She's still receiving speech and occupational therapy

My baby's *almost* normal

she's very emotional with me though
she doesn't throw fits @ school like with me


Thank you for all the prayers and encouragement over the years
I'm sooo happy
she's enjoying life and becoming her own person
God is good
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Kei, I am glad this was bumped cause I had no idea that what you and your precious little girl were going through. GOD is indeed a Healer and I know that HE can restore and heal in ways that defy logic and reason. I pray for your daughter's continued healing and restoration of perfect health. I also pray for your mental strength as well. Be blessed!
 
Sashaa08 said:
Kei, I am glad this was bumped cause I had no idea that what you and your precious little girl were going through. GOD is indeed a Healer and I know that HE can restore and heal in ways that defy logic and reason. I pray for your daughter's continued healing and restoration of perfect health. I also pray for your mental strength as well. Be blessed!
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WOW! I had no clue either. God bless you all!!!!! ((( HUGS )))
 
Kei,

Praying for you and your family for peace and a speedy recovery for your precious baby girl. ((((((hugs)))))))
 
Man, I totally just started crying when you said she's doing so much better now. I couldn't be happier for your family.
 
I'm praying for your baby and your family as well. Know that God is on ya'll side, and everything will be ok.

When you feel the most stressed; just take a deep breathe and EXHALE. And remember to take time out for yourself. If you're no good; then you're no good for your family...and your baby needs you! Keep praying, and praying...and praying some more.

May God bless and keep you and your family.
 
I am so happy that you updated us. I admire your strength and I could feel how much you love this little girl. Continue to be blessed. :hug2:
 
Thanks so much ladies

We had an ARd @ the school friday. Ms Ray started mainstream today , she will be in ppcd for therapy and self care time
She had 30 goals this year
She mastered 23

I applied for summer school @ the rehab center
she has very little fine motor skills
it takes her 10 minutes to put on her shoes, she can't write yet

I was offended by one of the ladies from the county
well her iq is probably low
you dumby, the fact that she can't control her fingers has NOTHING to do with how she understands or reads:wallbash:

I went to her advocate and she's the one that called for the change
I'm not comfortable with her in such a large class but I want her to have a normal life and that means being around all different kids her age
 
I'll continue to remember you and your daughter in prayer thanks for sharing your struggles God bless. You and your daughter are both beautiful!
 
Kei said:
Thanks so much ladies

We had an ARd @ the school friday. Ms Ray started mainstream today , she will be in ppcd for therapy and self care time
She had 30 goals this year
She mastered 23

I applied for summer school @ the rehab center
she has very little fine motor skills
it takes her 10 minutes to put on her shoes, she can't write yet

I was offended by one of the ladies from the county
well her iq is probably low
you dumby, the fact that she can't control her fingers has NOTHING to do with how she understands or reads:wallbash:

I went to her advocate and she's the one that called for the change
I'm not comfortable with her in such a large class but I want her to have a normal life and that means being around all different kids her age
Click to expand...


I don't know why people assume that if your child has a physical problem that it means that they aren't just as intelligent as everyone else. Make sure that lady doesn't have too much contact with dd. You don't need anyone convincing her that she isn't smart. I'm so happy that your baby is doing better. She's beautiful!
 
Oh my goodness Kei, this came at the right time. My niece is also going in for spinal surgery tomorrow, and I will PM you. I am going to start a thread for prayers!
 
thank you for all the support


Ms Ray has a best friend already:grin:
Her teacher said she works well in centers
we're taking it one day @ a time
 
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