14got
Well-Known Member
Hello ladies
Let me tell you a little about me for you ladies that don’t know me
Well I have a 3 year old daughter that was born early
She had a spinal dimple, mild case of spina bifida
So it was a wait and see if see would walk ( this was not explained to me until see was one)
So 2 Six months I got concerned about her inability to use her lower body.
It took about 6 months to get into the children’s hospital
So everyday I would pray that she would be healed and I would be about to cancel
She didn’t
I didn’t get prenatal care as quickly as I should have
She had a spinal dimple, mild case of spina bifida
So it was a wait and see if see would walk ( this was not explained to me until see was one)
So 2 Six months I got concerned about her inability to use her lower body.
It took about 6 months to get into the children’s hospital
So everyday I would pray that she would be healed and I would be about to cancel
She didn’t
I didn’t get prenatal care as quickly as I should have
After the Children’s hospital we started 3 types of therapy for her
Occupational, Physical, and speech, this went on for 2 years
2 more visits to the children’s hospital over this period
Occupational, Physical, and speech, this went on for 2 years
2 more visits to the children’s hospital over this period
My baby didn’t stand until 18 months
Walk until this time last year
Walk until this time last year
She recently had a seizure ( 2 weeks ago today)
She seizes over 40 minutes
Our life was turned upside down
They life-flight her to Houston ( the Children’s hospital we went to in April)
We had to drive because the medical team was so large
She slept a whole day
they said that was normal because of the drugs they gave her and her body was tired from the seizing
They put her to sleep and ran a MRI, EEg, Catscan, X-rays , organic urine, and a genetic test
Most of the tests ( MRI, Organic Urine, and Genetic testing) They wanted to run before
But we felt like if she’s progressing normally ( the milestones that a 2 year old makes)
That there was no need to run 20G’s worth of test to not find anything
All the testing except DNA ( takes a month) came back and she’s normal , healthy, ( they say she’s a little on the small side, my parents say I was one of the smallest kids they ever saw when I was her age, she can still fit 18 months in some clothing)
They were amazed that she seized so long with no damage.
But the true Healer stepped in and touched my baby, that's the only thing that could explain it
Well she came home everything went back to normal for her
But I’m overcome with worry
I don’t sleep well
She jumped of the couch and bumped her head
I was so upset
We took turns checking her like the hospital said and I held her while she was asleep
That drama over she started school
And I go and sit outside the school, stand in the hall, or go to the library about 4 blocks away so I can be near her
My hubby thinks I’m too obsessed, kids fall, kids go to school
But I have no peace, I'm at the point where I don't even feel comfortible with having her in school
She seizes over 40 minutes
Our life was turned upside down
They life-flight her to Houston ( the Children’s hospital we went to in April)
We had to drive because the medical team was so large
She slept a whole day
they said that was normal because of the drugs they gave her and her body was tired from the seizing
They put her to sleep and ran a MRI, EEg, Catscan, X-rays , organic urine, and a genetic test
Most of the tests ( MRI, Organic Urine, and Genetic testing) They wanted to run before
But we felt like if she’s progressing normally ( the milestones that a 2 year old makes)
That there was no need to run 20G’s worth of test to not find anything
All the testing except DNA ( takes a month) came back and she’s normal , healthy, ( they say she’s a little on the small side, my parents say I was one of the smallest kids they ever saw when I was her age, she can still fit 18 months in some clothing)
They were amazed that she seized so long with no damage.
But the true Healer stepped in and touched my baby, that's the only thing that could explain it
Well she came home everything went back to normal for her
But I’m overcome with worry
I don’t sleep well
She jumped of the couch and bumped her head
I was so upset
We took turns checking her like the hospital said and I held her while she was asleep
That drama over she started school
And I go and sit outside the school, stand in the hall, or go to the library about 4 blocks away so I can be near her
My hubby thinks I’m too obsessed, kids fall, kids go to school
But I have no peace, I'm at the point where I don't even feel comfortible with having her in school
It’s like my mind is so busy, so afraid.
Will you ladies please pray for me and my baby that the genetic testing will come back normal?
We have two visit lined up, one with the eye doctor (her eyes are bad), and the neurologist
Will you ladies please pray for me and my baby that the genetic testing will come back normal?
We have two visit lined up, one with the eye doctor (her eyes are bad), and the neurologist
some pics
Last edited:
I pray in agreement with you for your daughter. Blessings to you and your family!! 
God is good...just came across this thread but I'm happy to hear the good news!
