***!!! ~ I'm a Survivor ~ !!! ***

[Evolving78]

I have been natural for 6 years now and that has not helped my edges at all. I just had my Vit D levels checked and apparently, I have a severe Vit D3 deficiency and a zinc deficiency. Just started taking supplements today and I will let you know if any thing changes.

I probably do as well. I need to look into that. I know it's bad, but I have just not been feeling doctor visits lately. I'm so sick of the waiting and just poor customer service.

 

[fatimablush]

are you guys still using that essential oil blend for hair growth?

 

[Evolving78]

are you guys still using that essential oil blend for hair growth?

I never tried that, but I have mixed tea tree oil with castor oil and it helped before. Anybody here have grew their hair back from using weave bonding glue for years? I have a friend that could use some help.

 

[ajoke]

I probably do as well. I need to look into that. I know it's bad, but I have just not been feeling doctor visits lately. I'm so sick of the waiting and just poor customer service.

A conventional dermatologist did not help me. I went to a naturopath.

 

[weavesimi]

Needless to say my crown hasn't grown back and only got worse after the birth of my daughter. I recently had a biopsy and I indeed have CCCA unfortunately. Has anyone considered a hair transplant?

 

[Evolving78]

In going to pick up some Rosemary, cedar wood, and thyme this weekend. I started using my nioxin conditioner in my crown area. Just going to continue with washing my hair every two to three days, and dc. I want to wear my hair out so bad, but I just have too much going on right now. Bunning and wearing my wig for events will just have to do for now.

 

[HopefulOne]

I am a survivor. I went to a derm who said that I did not have scarring Alopecia but I haven't had hair in my crown for 20 years . I have started to use sprinolactone and rogaine. I don't have much hope of growing anything back but it is hopefully preventive of anymore. I use the crayon designed to cover gray to color my scalp which doesn't look to bad because I have APL. 3c totally defined curls. You only get what you can bear.

 

[HopefulOne]

Needless to say my crown hasn't grown back and only got worse after the birth of my daughter. I recently had a biopsy and I indeed have CCCA unfortunately. Has anyone considered a hair transplant?

I did but my donor hair is not appropriate

 

[fatimablush]

Bumping this to finish reading later

 

[Evolving78]

I still haven't picked up the essential oils yet. I still have been using castor oil in that area. I asked my SO, mom, and son and they stated it looks like the hair is starting to sprout. I'm just not comfortable with wearing my hair out yet. I have it in a ponytail today. Since I'm using a keratin treatment, I will wash my hair every five days. I thought about using rogaine in that area, but will I have to keep using it? How are you ladies keeping those areas moisturized?

 

[Evolving78]

I got some Rosemary and cedar wood. I'm going to add some drops to my castor oil and massage that in. I would have gotten more oils, but I ended getting some other things.

 

[ilong]

Any thoughts to using Tricomin, Folligen and/or Emu Oil?

 

[virgo_chinwe]

bumping thread....I was diagnosed with CCCA by a doctor in Feb. And I got two second opinions who disagree with the biopsy of CCCA because the presentation of my alopecia is not consistent with CCCA.

 

[ilong]

bumping thread....I was diagnosed with CCCA by a doctor in Feb. And I got two second opinions who disagree with the biopsy of CCCA because the presentation of my alopecia is not consistent with CCCA.

@virgo_chinwe - glad to hear you had second opinions. My girlfriend was diagnosed with CCCA. I posted the following in https://longhaircareforum.com/threa...for-androgenic-alopecia.761665/#post-21689165

A friend, who was diagnosed with Central Centrifugal Cicatricle Alopecia (CCCA) is considering Stem Cell Therapy (SCT) to treat her hair loss. I don't think she has CCCA. Looking at her hair loss pattern I think she may have AGA as her loss is spotted throughout her scalp as opposed to a pattern like male pattern baldness (vertex outward). I'm not the doctor <lol>, but I don't always trust doctors and their diagnosis. Before making the financial investment, she wanted to observe the progression of the hair loss so she cut off her hair down to 1/2 inch. (Jennifer Hudson new cut). Originally, she was considering PRP, however after researching SCT she believes efficacy is greater with SCT over PRP

 

[ilong]

Keep in mind - just because a doctor is a dermatologist does not mean they are skilled in hair loss. It would surprise me if most of them see 5 patients annually for hair loss. Of course when seeing a patient they can't say "I don't know" - so their diagnosis are the common - "traction alopecia" or "female/male pattern baldness". Consider seeing a dermatologist who specialized in "hair loss/treatment". Chances are health insurance won't cover the services.

 

[virgo_chinwe]

Keep in mind - just because a doctor is a dermatologist does not mean they are skilled in hair loss. It would surprise me if most of them see 5 patients annually for hair loss. Of course when seeing a patient they can't say "I don't know" - so their diagnosis are the common - "traction alopecia" or "female/male pattern baldness". Consider seeing a dermatologist who specialized in "hair loss/treatment". Chances are health insurance won't cover the services.

Thanks so much!! I am looking into the PRP option----I am liking what I am reading thus far! I still need to more research though but I have already found a specialist with excellent reviews.

 

[ilong]

@virgo_chinwe - you are welcome. Research is very important as well as attacking the hair loss with an arsenal to keep the follicles alive and active. Please keep us posted and thoughts of healing extended to you!

 

[TXChic254]

Hi everyone! I've been off the forum for a while (since the mobile app wasn't working). Last year, I was diagnosed with CCCA. My crown has some balding, scarring and thinning. I'm currently taking Clobetasol & Doxy-Cycline. The meds have kept the bald spot from spreading. I noticed the spot 5 years ago when it was smaller. That was partly why I finally went natural 3 years ago. The derm thinks there's no hope of it growing back in even if I try rogaine or the like. He also said he doesn't think I'm a good candidate for a transplant as he doesn't think the baldness is big enough to go through with a transplant. I am so discouraged.

 

[ilong]

@TXChic254 - to you. I am sorry this is happening to you but you have to keep fighting - don't give up and don't give in! Research any and all alternatives. Research information on HAIR LOSS FORUMS for recommendations, tips, strategy! The doctor who diagnosed you with CCCA a hair loss specialist or just a dermatologist? You should seriously consider going to a Hair Loss specialist - a trichologist, especially if its possible you have CCCA. Also please have your iron and ferritin levels checked.
I hope you will find something to help you win this hair loss battle.

 

[TXChic254]

Thank you for your encouragement! I will do my research. The doctor is a dermatologist.

 

[virgo_chinwe]

@virgo_chinwe - you are welcome. Research is very important as well as attacking the hair loss with an arsenal to keep the follicles alive and active. Please keep us posted and thoughts of healing extended to you!

Hi! @ilong I talked to my doctor about it...and she stated that I probably wouldnt be candidate for the procedure because its for those with established auto-immune disorders??

Also what supplements, topical treatments are you using to combat the hair loss/alopecia/ccca?

My derm currently has me on ketoconazole shampoo and clobetasol oinment twice daily.
I am taking a prenatal vitamin, 5000mcg biotion (doc recommended), country life hair vits, biosil, bamboo, and vitamin d.

I am on a desperate search for natural, moisturizing conditioner, leave-ins etc.

 

[ilong]

Hi! @ilong I talked to my doctor about it...and she stated that I probably wouldnt be candidate for the procedure because its for those with established auto-immune disorders??

What???!!!?? ^^^^ I don't have an auto-immune disorder. With the exception of aching knee joints, I'm perfectly healthy and I've already had 3 PRP treatments and 3 additional treatments scheduled for the remainder of the year. The procedure is used to treat Hair Loss. Osetoarthritis, knee injuries as well as (Vampire) Facelifts. Tiger Woods has had the treatments for his knees as well as other athletes. http://www.bloomberg.com/news/artic...y-used-by-tiger-woods-lures-everyday-athletes and http://abcnews.go.com/Health/Techno...latelet-rich-plasma-therapy/story?id=10303312
Please do your research @virgo_chinwe ! There is a thread on the procedure being used for (Vampire) Facelift (mstar posted that she had the treatment). There is also the thread I started on the Procedure. Please ignore the "for Androgenic Alopecia" as the treatment is for hair loss in general. In that thread I list another site -(realself.com) with reviews and information on the procedure.

Also what supplements, topical treatments are yo.u using to combat the hair loss/alopecia/ccca?

I am using Folligen (a copper peptide) and emu Oil as a topical treatment. I massage my scalp faithfully twice a day with both. As of Oct 1st I've added Phytophanere and Viviscal to my supplement regiment. I switched from Nature's Bounty HSN to Country Life Maxi Hair middle of September

My derm currently has me on ketoconazole shampoo and clobetasol oinment twice daily.
I am taking a prenatal vitamin, 5000mcg biotion (doc recommended), country life hair vits, biosil, bamboo, and vitamin d.
In addition to the PRP thread, please check out the thread on LLLT - low level laser therapy as well. @ejfel and @Hisbeloved beloved posted some good information in those threads. @ejfel posted the link to a good site for hair loss. It appears to be focused on men, (I believe it was originally intended for men) but there is a host of information on it for males and females, suffering from hair loss. I'm not sure if it's good to be on the clobetasol for an extended period of time, isn't that a steroid? Have you tri

I am on a desperate search for natural, moisturizing conditioner, leave-ins etc. I am a simple gal in that area, just basic OTC and OTG purchases.
@IDareT'sHair is very knowledgable on good products in those areas; perhaps she will jump in here and respond with some recommendations.

 

[Hisbeloved]

Hi everyone! I've been off the forum for a while (since the mobile app wasn't working). Last year, I was diagnosed with CCCA. My crown has some balding, scarring and thinning. I'm currently taking Clobetasol & Doxy-Cycline. The meds have kept the bald spot from spreading. I noticed the spot 5 years ago when it was smaller. That was partly why I finally went natural 3 years ago. The derm thinks there's no hope of it growing back in even if I try rogaine or the like. He also said he doesn't think I'm a good candidate for a transplant as he doesn't think the baldness is big enough to go through with a transplant. I am so discouraged.

Don't be discouraged! Use that energy to prove them wrong. They "practice" medicine. My doctor told me that my hair probably wouldn't grow back either but it is. Even she has been impressed. I was on an antibiotic for a total of 3 months and the cortisone ointment (although I only used it daily for a month. I didn't like the thickness of it.) I'm on month number 5 with the laser helmet and I also have been oiling my scalp with wild growth hair oil. The oil stinks but I think it's helping. Don't give up on your hair! Continue to research.

 

[mzteaze]

Bumping...