preciouslove0x
Well-Known Member
......I liked her hair. I'm not sure where it or she is at right now though
What's your current opinion on MopTop (aka as "Nikole"?


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I heard she is very very sick right now. I think it might be serious. I pray not though. Maybe she is just taking a break.
I love her hair and her videos and her blog!
Didn't see that update earlier. She's been gone for a while with no communication. I've ordered over $80 worth of jewelry from her back in December and never received or heard anything from her since then.....
You posted this thread within minutes of her updating her blog and explaining that she was very sick
If you read the blog she says her mother is trying to handle everything right now while she deals with her illness
I wish MTM the best and hope she gets well!!!!
Yeah according to her website she is sick with Wilson's disease. I wish her the best...
http://moptopmaven.blogspot.com/
Did you have an order that got delayed due to her illness?Yea I only checked it this morning to see if it she said anything about refunds. I see it now though. Me posting this thread "within minutes" of her posting hers was just a really odd coincidence.![]()
I really missed her [COLOR=White[B]]and my money..[/B]
ETA: If you read some of the newer comments from January 4 you'll know what I'm talking about as far as her disappearance.....
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Did you have an order that got delayed due to her illness?
If this is about your money, say that. Why camouflage it about being about her hair? Are you asking us how we feel about her situation or no? If you want to start the thread, speak on exactly what it is you want to say.
I try to check in her blog at least once a week and was waiting for an update. I'm gonna have to google Wilson's Dosease never heard of it.
She has a beautiful hair and seems to have a nice personality.
My OP asks "what is your current opinion about MopTop?" I hope that clears up the confusion. Sorry about that.
Wilson's disease
Hepatolenticular degeneration
Wilson's disease is an inherited disorder in which there is too much copper in the body's tissues. The excess copper damages the liver and nervous system.
Causes, incidence, and risk factors
Wilson's disease is a rare inherited disorder. If both parents carry an abnormal gene for Wilson's disease, there is a 25% chance in each pregnancy that the child will have the disorder.
Wilson's disease causes the body to take in and keep too much copper. The copper deposits in the liver, brain, kidneys, and the eyes. The deposits of copper cause tissue damage, death of the tissues, and scarring, which causes the affected organs to stop working correctly.
This condition is most common in eastern Europeans, Sicilians, and southern Italians, but may occur in any group. Wilson's disease typically appears in people under 40 years old. In children, the symptoms begin to show by age 4.
Symptoms
- Abnormal posture of arms and legs
- Confusion or delirium
- Dementia
- Difficulty moving arms and legs, stiffness
- Difficulty walking (ataxia)
- Emotional or behavioral changes
- Enlargement of the abdomen (abdominal distention)
- Personality changes
- Phobias, distress (neuroses)
- Slow movements
- Slow or decreased movement and expressions of the face
- Speech impairment
- Tremors of the arms or hands
- Uncontrollable movement
- Unpredictable and jerky movement
- Vomiting blood
- Weakness
- Yellow skin (jaundice) or yellow color of the white of the eye (icterus)
Signs and tests
A slit-lamp eye examination may show:
A physical examination may show signs of:
- Limited eye movement
- Rusty or brown-colored ring around the iris (Kayser-Fleischer rings)
Lab tests may include:
- Damage to the central nervous system, including loss of coordination, loss of muscle control, muscle tremors, loss of thinking and IQ, loss of memory, and confusion (delirium or dementia)
- Liver or spleen disorders (including cirrhosis, splenomegaly, and liver necrosis)
If there are liver problems, lab tests may find:
- Complete blood count (CBC)
- Serum ceruloplasmin
- Serum copper
- Serum uric acid
- Urine copper
Other tests may include:
The gene responsible for Wilson's disease has been found. It is called ATP7B. DNA testing is available for this gene. However, testing is complicated because different ethnic groups may have different changes (mutations) in this gene.
- 24-hour urine copper test
- Abdominal x-ray
- Abdominal MRI
- CT scan of the abdomen
- Head CT scan
- Head MRI
- Liver biopsy
Treatment
The goal of treatment is to reduce the amount of copper in the tissues. This is done by a procedure called chelation -- certain medications can bind to copper and help remove it through the kidneys or gut. Treatment must be lifelong.
The following medications may be used:
Vitamin E supplements may also be used.
- Penicillamine (Cuprimine, Depen) binds to copper and leads to increased release of copper in the urine.
- Trientine (Syprine) binds (chelates) the copper and increases its release through the urine.
- Zinc acetate (Galzin) blocks copper from being absorbed in the intestinal tract.
Sometimes, medications that chelate copper (especially penicillamine) can affect the function of the brain and nervous system (neurological function). Other medications under investigation may bind copper without affecting neurological function.
A low-copper diet may also be recommended. Foods to avoid include:
You may want to drink distilled water because most tap water flows through copper pipes. Avoid using copper cooking utensils.
- Chocolate
- Dried fruit
- Liver
- Mushrooms
- Nuts
- Shellfish
Symptoms may be treated with exercise or physical therapy. People who are confused or unable to care for themselves may need special protective measures.
A liver transplant may be considered in cases where the liver is severely damaged by the disease.
Support Groups
Wilson's disease support groups can be found at www.wilsonsdisease.org and www.geneticalliance.org.
Expectations (prognosis)
Lifelong treatment is needed to control Wilson's disease. The disorder may cause fatal effects, especially loss of liver function and toxic effects of copper on the nervous system. In cases where the disorder is not fatal, symptoms may be disabling.
Complications
Liver failure and damage to the central nervous system (brain, spinal cord) are the most common and dangerous effects of the disorder. If not caught and treated early, Wilson's disease is fatal.
- Anemia (hemolytic anemia is rare)
- Central nervous system complications
- Cirrhosis
- Death of liver tissues
- Fatty liver
- Hepatitis
- Increased number of bone fractures
- Increased number of infections
- Injury caused by falls
- Jaundice
- Joint contractures or other deformity
- Loss of ability to care for self
- Loss of ability to function at work and home
- Loss of ability to interact with other people
- Loss of muscle mass (muscle atrophy)
- Psychological complications
- Side effects of penicillamine and other medications used to treat the disorder
- Spleen problems
Calling your health care provider
Call your health care provider if you have symptoms of Wilson's disease. Call a genetic counselor if you have a history of Wilson's disease in your family and you are planning to have children.
Prevention
Genetic counseling is recommended for people with a family history of Wilson's disease
Wow! I'd wish her mom had updated us sooner. Her customers were truly left in the dark. I will wait until the summer if I have too to get my refund. Her fans & customers really had no idea until today.
So this was motivated by your order. There's nothing wrong with that - you didn't know, alot of people didn't. But I wish you just would have said that in the first place.